Thursday, March 19, 2009

A good day...

Kenzie's meals have been getting better and better! Her mood is now terrific during them and she actually crawls over to her highchair herself. When we ask her what time it is, Kenzie makes the sign for "eat" and points to the cd player so we can turn on her favorite Britney Spears. For Jordan and I, this is such a special and great thing to watch. She actually has fun in her meals and we are starting to have hope that maybe one day, she will actually enjoy food.

Kenzie's vomiting has decreased significantly and the diarrhea is officially gone. She has been eating a wide variety of pureed fruits, vegetables, chicken, turkey, oatmeal, and rice cereal. Because everything has been so great, Jordan and I decided tonight to start introducing eggs. Eggs are huge for us because of the calorie and fat content in them. We have figured that 1oz of eggs is about 50 calories. If we gave Kenzie eggs twice a day that would be an extra 100 calories (great math right amy?!?)... what that translates into is 1.5hrs off of Kenzie's tube feeds overnight. Since she is back down to only 8hr20m on the tube as it is, another 1.5 hrs off would be amazing. We will obviously be watching her stools closely over the next few days as it might take awhile to see if she can digest the eggs but we are crossing our fingers and hoping it goes well. I will keep you all updated.

Every year Jordan surprises me with tickets to the circus. Last year because Kenzie was in and out of the hospital on an almost weekly basis we couldn't go. But this year Kenzie will join in our tradition and come with. I am so excited to take kenzie to the circus and can't wait for the days that Kenzie and I can take flying trapeze lessons together (no I am not kidding... pre-pregnancy I took lessons 2 or 3 times a week). Also, our vacation to Puerto Rico leaving March 28 is a GO! I can't tell you how nice for me to be able to post good things here :-)

More in a few days...

Monday, March 16, 2009

Kenzie Being Fed At Britney Concert

Kenzie Laughing

Long Time No Post

Sorry, I can't believe its been almost a week since I last posted. Actually I can believe it since it seems lately I don't even have time to sit down. Kenzie's GI bug seems to come and go. We went to her gastro and he told us it can take Kenzie weeks to recover from a simple stomach virus. It is definitely getting better but we still have bouts here and there. Her meals are hit and miss. She seems to refuse her first bite with me 90% of the time whereas never with Jordan. Her mood is generally good but the vomiting incidents are pretty high. We have opened Kenzie up to all of the foods she was getting before she got sick at KKI and she is doing well with the variety. I have also started to puree some foods myself as Earths Best doesn't make regular squash and green beans.

This weekend we went to the Britney Spears concert. Kenzie had a meal during it and it went really well! Kenzie LOVED the concert! She was bopping her head the whole time and stayed up till the end. For those who have been following... Kenzie is used to listening to Britney during her meals. Its part of her protocol because awhile back Jordan and i noticed that she danced anytime it came on in the car. As a joke the Behavioral Psychologist listened to us and put it on during her meal and from meal 1, Kenzie responded. One of jordans attendings had tickets in a box for the concert and let us take Kenzie. It was great!!!

I still have yet to put up the pictures from our last day at KKI but I will (hopefully). I just figured the video of Kenzie bopping to the beat was way more fun. We love being home again and are getting back into the swing of things. Last night I had the greatest surprise... my friends Lindsay and Carly threw me a surprise birthday/coming home party. When I spent my 30th birthday in the hospital with kenzie, we always joked how 31 would be a blowout because there was no way it could be as bad as 30. So this year when 31 was spent in a different state in another hospital, it really was no fun. Last night was so special. I really have the best friends and family ever! Thank you :-)

Lots to do before bedtime so I have to run but hope you all enjoy the videos