Friday, January 30, 2009

Good News or Bad News...

That's the call I woke up to this morning from Jordan (he stayed at the hospital with Kenzie last night). Normally, I call him with this phrase and do not like to be on the receiving end of the words. The good news was kenzie woke up with ZERO swelling. The bad news is she had completely stooled out. After the surgery we put Kenzies feeds back on and she couldn't tolerate the higher rate straight into her small intestines, we guess. She pooped literally like 15 times in 24 hours. We had to slow down the rate and she is now back on a 24 hour drip. We are going to very slowly increase her once every 24 hours going forward until we see what her breaking point is.

The other good news is that Kenzie is like a new person. She is SO SO happy again. When she is not swollen its really amazing what she'll do. We should put her under anesthesia everyday if this is the results we get in her therapy. Feeding, OT and ST have gone great for 2 days! They have upped her "bites" from 10 bites a meal to 20. She is starting to really be able to propel the food from the front of her mouth to the back AND she is swallowing without vomiting (a result of not having formula in her belly). Best of all... she's not crying! Tomorrow they are going to try and switch around the variety they give her. Since the pears debacle, Kenzie has only been fed pureed carrots. We are hoping that this time she takes to different tastes better too.

Tracy Brooks came yesterday to visit and brought way too much candy. But Kenzie hammed it up for her and they were dancing on the way to dinner in the back of the car to Britney. Tomorrow Eiee and Grandpa Billy are coming for the day. I'm sure we'll have fun. Then Sunday, Jordan has to leave and won't be back for 2 weeks. It'll suck but hopefully will go quickly.

My goal is to make time Sunday to email back everyone. Sorry for the delay until then. I just get so caught up here.

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